Rare Like Us

Rare Like Us
Author :
Publisher : Bookbaby
Total Pages : 0
Release :
ISBN-10 : 1543978819
ISBN-13 : 9781543978810
Rating : 4/5 (810 Downloads)

Book Synopsis Rare Like Us by : Taylor Kane

Download or read book Rare Like Us written by Taylor Kane and published by Bookbaby. This book was released on 2019-09-02 with total page 0 pages. Available in PDF, EPUB and Kindle. Book excerpt: Taylor Kane was a daddy's girl from the moment she was born, smiling and cooing whenever her father was around and refusing to sleep until he held her in his arms. But shortly after she turned three years old, the unthinkable happened. Her father was diagnosed with a rare, genetic disease for which there was no cure. It wasn't long before he began to experience a number of bizarre and frightening symptoms, and young Taylor watched helplessly as the disease ravaged his body and mind, transforming him into a shell of the father she once knew: a man unable to walk, talk, swallow or understand what was going on around him. A man who no longer recognized her.Fast forward five years. Her beloved father now gone, nine-year-old Taylor is dealt another devastating blow when she learns that she is a genetic carrier of the disease that took her father's life. Not only will her future children have a fifty percent chance of inheriting the disease, she, too, faces the risk of developing symptoms of her own in the future. In Rare Like Us, Taylor, now a twenty-one-year-old college student, shares the invaluable lessons she learned growing up in a family plagued by a genetic disease so rare that most doctors have never seen it, much less heard of it. She recounts with raw honesty how she managed to conquer her childhood demons and come to terms with her grief and loss; how she transformed her pain into passion and purpose; and how she continues to strive to honor her father's legacy by living her life in a way that would make him proud. This compelling memoir of a young woman's resilience and determination will captivate and inspire not only those who have experienced the isolation and despair that comes with having a rare disease, but anyone who has struggled to find the silver lining in heartbreak or tragedy, or who is searching for hope in the face of an uncertain future.


Rare Like Us Related Books

Rare Like Us
Language: en
Pages: 0
Authors: Taylor Kane
Categories: Biography & Autobiography
Type: BOOK - Published: 2019-09-02 - Publisher: Bookbaby

DOWNLOAD EBOOK

Taylor Kane was a daddy's girl from the moment she was born, smiling and cooing whenever her father was around and refusing to sleep until he held her in his ar
Just Like Me!: A Book about a Girl with a Rare Disease
Language: en
Pages: 22
Authors: Anne Rugari
Categories: Young Adult Nonfiction
Type: BOOK - Published: 2018-10-30 - Publisher: Braughler Books, LLC

DOWNLOAD EBOOK

Raising a Rare Girl
Language: en
Pages: 321
Authors: Heather Lanier
Categories: Family & Relationships
Type: BOOK - Published: 2021-07-06 - Publisher: Penguin

DOWNLOAD EBOOK

“A remarkable book . . . I found myself thinking that all expectant and new parents should read it.” —Michelle Slater A New York Times Book Review Editors
Rare Diseases and Orphan Drugs
Language: en
Pages: 407
Authors: Jules J. Berman
Categories: Medical
Type: BOOK - Published: 2014-05-26 - Publisher: Academic Press

DOWNLOAD EBOOK

Rare Diseases and Orphan Drugs shows that much of what we now know about common diseases has been achieved by studying rare diseases. It proposes that future ad
An Ordinary Day
Language: en
Pages: 0
Authors: Karen Haberberg
Categories: Photography
Type: BOOK - Published: 2017-10-24 - Publisher: powerHouse Books

DOWNLOAD EBOOK

An Ordinary Day is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all